How I do it

Mateo & Maya playing Wii

Over the weekend we got together with my aunt and uncle who we hadn’t seen since Christmas.  We always have a great time with them.  Mateo was running around and chasing his sister Maya around the room, calling “Come on Maya!”

My aunt and uncle are used to seeing him in a large setting with lots of family around. My mom comes from a family of 5 brothers and sisters so family gatherings are always filled with chaos.  I feel so lucky that Mateo is OK with all of the noise and action, he’s able to regulate himself really well in those situations. This is a blessing since my husband and I both have large families.

Mateo ran up to my aunt and says to her “Up high!” “Down low” “TOOOOO slow!”  She laughs and stares at me in amazement.  She has never seen him like this.  She has never seen him so interactive.  She and my uncle are very impressed by his progress.

I say yes, he’s worked so hard to get here.  To have any expressive language at all has taken so much work.  I always have to tell people it’s not by some miracle, or diet or anything but intense therapy and  lots of work on all of our parts.  I can tell he remembers them, he would be hesitant to approach any strangers like that.  But the progress is very apparent.  It’s apparent to all of us.

So after the kids go to bed, we sit and talk about everything.  My uncle says he has learned a lot about Autism from us and my other cousin who as Aspergers.  And that makes me feel really good, that because of Mateo people are starting to understand what Autism really is.  We talk about the hours of ABA therapy in the house, the speech, OT, group therapy. How insurance is double the price for him even though they don’t cover anything.  How difficult running your own business is in this economy,  out of our home and taking care of two kids.  And everyone always says to us, “I don’t know how you two do it.”

Some days I don’t know how we do it either. Some days I want to hide in my bed and pull the covers over my head and ignore the world.  But I find happiness in the progress, I see how all of our hard work, all of Mateo’s hard work is paying off.  I find motivation in meeting new friends online, people out there for services for our children, trying to make a difference in their future.  And I find love in all of the support of our amazing friends and family.  And that’s what keeps me going every day.

That and a fun night of Wii with my amazing kids like we had last night.  Maya sings while Mateo does the dance moves.  It’s just about the cutest thing in the world. Instant happiness!

This entry was posted in Daily Stuff, Family. Bookmark the permalink.

2 Responses to How I do it

  1. Valeska says:

    Wow, I hope one day I can sit and talk to my family members that way. Whenever we start talking about my son’s autism they interrupt with cheering words like “oh it’s just a phase” or “kids will be kids” and the most popular “He’s really clever and he’s taking advantage of the situation”. Being able to talk to your family and have them recognize all the wonderful things that are happening / improvements definitely makes the fight that much more rewarding. I make sure to always stay focused on my son’s improvement and never take anything for granted. We all have those days we want to stay in bed, but just one look at them seems to recharge us to want to keep going 🙂 BTW, I love how you focus on all HIS hard work to get where he is, keep up the awesome job!

    • melmama says:

      Thanks so much for all of the kind words. Oh yes, I have heard the “he’s a smart kid and he will be fine” many times too. Love to have the support and understanding from other parents. It is so much appreciated.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s